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Understanding the Patient Journey for a Gene Therapy within Haemophilia

Insights

Understanding the Patient Journey for a Gene Therapy within Haemophilia

Project Scope

To understand the patient journey and potential challenges

KSA

KSA

Challenge

Our client was looking to launch a gene therapy in Saudi Arabia and wanted to understand the challenges that would be faced throughout the patient journey for genetic testing

Solution

Primary research with haematologists, hematopathologists and pathologists in Saudi Arabia to understand the patient journey and potential testing challenges

  • Primary research consisting of qualitative discussions
  • Understanding the patient journey and key areas of delays
  • Understanding where genetic testing would take place
  • Understanding knowledge gaps of haematologists in Saudi Arabia pertaining to gene therapies

Result

  • Understood typical patient journeys and identified where genetic testing is likely to take place
  • Understood pathologist perception on genetic testing and sampling journey, highlighting key drawbacks and delay areas – recommended improvements to client testing plan to align with local expectations
  • Enabled client to deliver localised haematologist education campaigns through the identification of local knowledge gaps